Re-imagining vitiligo as disability: to improve quality of life

Author: 
Naveen Krishna Tarur
Abstract: 

Vitiligo is a pigmentary disorder of the human skin, with unknown etiology, affecting about 1% of population worldwide, without any predilection to race, gender and age of onset. This disorder is associated with diverse range of Social stigma, thereby affecting distribution of life chances throughout the life and especially in the development phases, thus seriously impairingquality of life of Persons with Vitiligo (PwV).Through RPWD act 2016 Indian government has empowered wider range of Persons living with Disability conditions through rights based approach to lead an improved quality of Life. It’s a major holistic social welfare framework which aims at establishing inclusive environment for participation, prevention of ill-treatment, removal of social barriers, provision of holistic healthcare, recreation, establishment of safeguarding support systems to enable daily life through enhancedaccessibility, catalyst for growth in developmental phases of education, skill development, and employment. Apart from increasing the disability conditions to 21, with due considerations to disability as a dynamic phenomenon this act also makes future provision for central government to add new categories of disability. This paper makes an attempt based on various disability models to conceptualize based on lived experiences of PwVifvitiligo which results in socially repelling disfigurement, can beconsidered as disability and how making this act little flexible for extension of certain provisions if not all can help in improving quality of Life of PwV.

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